@manchesterms 

Last reply

manchesterms

Newbie!

Hi all, So i am recently diagnosed with ms as of june this year. Ive read so much about it but still do hazy, it seems to have such a powerful& uncomfortable grip on me already. Maybe that will pass as i get more 'used' to it. I was wondering have many ppl had to adapt their lives ie working hours/ patterns since being diagnosed and how to balance full time work, 2 children& feeling totally drained of all energy? Or has anyone found the key to keeping on top if it...if there is such a thing?? Thanks!
@Highlander

Hi @manchesterms Welcome to the club! I watched one a classic film the other day... The wizard of oz. I'm guessing your feeling a bit like Dorothy crash landing in MS world! That's what it felt like for me. I'll warn you now stay away from Dr Google! Only read reputable sites like this or MS trust and the likes. Google is full of lions, tigers and bears oh my! You find loads of advice and suggestions here. I'm sure the more adult members will be a long soon Welcome again!

@Vixen

Hello @manchesterms and welcome, although it always sounds weird welcoming people to this type of forum! One thing about MS is that it is really affected by stress as this can overload our already compromised systems. When you are newly diagnosed, the temptation is often to try to look further ahead, start planning and fretting about the future. If I could recommend one thing, it would be to slow right down and take a breath whilst you begin to absorb this shock of a diagnosis. Being a parent, you will be used to taking one day at a time and whatever comes with it. Until you have processed this new interference, just focus on being as healthy and balanced as you can. Accept all help and support that is around you. The early temptation that I found, was to push myself to prove that I could still do things. That kind of endurance testing can come later; in your profile you haven’t written an MS type of medication, so I assume that things are unfolding. Anyway, there is a lot of support for you here, whatever youthing, feel of worry about, it’s a guarantee that someone here will have experienced the same! All the best x You don’t have to tell your workplace, I guess there are advantages each way. Employment law is there to protect you, so until you are a bit more certain, don’t rush to make decisions. You will need to inform DVLA if you are a driver though, as most of us have to have our licences renewed every three years as standard. It’s no fuss and doesn’t cost anything. Another thing I gave myself everyday, was the chance to wallow in thoughts and fretting for 25 minute a day and that was the limit. Then, if stuff cropped up, I’d have to write it on the list for the next day!