@Narelle_Murray 

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Narelle_Murray

New to this - old to MS

Just joined this and maybe I can offer a positive point of view to RRMS. I was diagnosed in 1997 at 43, newly married. I’m guessing I’d had MS for many years only I just assumed I was clumsy, lazy and fatigued. The neurologist said I either had a tumour or MS. I was hoping for the latter and that’s what I have. Had all the symptoms along with not being able to walk straight or more than 30’ without resting. On a walking stick and not be able to trust myself driving. But I researched meds and opted for rebif beta interferon 1a. Had that injected by my husband (I’m paranoid about needles) from 1999 to 2005. The side effects were awful but he bagged me into it. In 2005 my husband had a massive stroke - I had to learn to look after myself and eventually him. I had no time to wallow or take myself off for a sleep mid afternoon. Anyway I did that for 5 years until I lost him. 2010 I sucked it up and realised my symptoms weren’t that bad anymore. My MS had gone into remission. I still have it, I still get a little tired but I travel around the world, I’m a celebrant and I conduct weddings and funerals. I’m feeling pretty good. I don’t have a big social life and I avoid noisy venues but other than that I’m doing well. I hope everyone has the chance to lead a near normal life.
@Vixen

Wow @narelle_murray, that really is a positive spin in spite of the sadness you've had. Attitude counts for such a lot in these journeys. I think for many people, the idea of leading a normal life - and I include myself in this - is that our interpretation of normal often has to change and adjust, and that can be scary. But you're right, whatever the facts, you do have to suck it up and get on with life. Thanks for your story - not sure which country you're in? :-)

@Narelle_Murray

@vixen thanks for the response, I’m in australia. I see you live in my favourite city in the world. I was over there last July/August.