@danielle24 

Last reply

danielle24

New to MS

Hey everyone I’m 27 years old and just got diagnosed with MS. I don’t know much about it but I am reading lots. I just wanted to say hi and looking forward to reading all of your posts. All the best Danielle
@US-Emma

Hi Danielle, I was diagnosed at 29, but that was many years ago. . At this point in your disease you have the largest brain volume you will ever have. MS is now destroying your brain and will continue to do so your entire life. . I am a nurse and I know this is hard to hear. If you have not yet heard this yet- we have a saying in MS that “Time is Brain”. Meaning the longer you have MS, the more brain you lose- even on MS medication. . So you have the opportunity with your your age and newly diagnosed status to preserve the brain you have now. The way to do this is to take a Highly Effective Disease Modifying Drug or treatment. Here are the top 3: . 1. Bone Marrow Transplant using the BEAM protocol (BEAM just stands for the drugs they use before the transplant. You get your own cells back after they have been washed- so you don’t have to worry about rejection. . This protocol has been in testing for 20+ years but may not be available everywhere in the UK. The US will start a new clinical trial to compare to other highly active DMD in Jan 2020. . 2. Lemtrada. This is a medication you take for 5 days. It is out of your system within a month. You take 3 days of the same drug 1 year later. . With your young age and newly diagnosed status both of these have the potential to offer you a cure or at the very least long term suppression of pain, fatigue, muscle spasms, blowed and bladder problems, eyesight problems, walking difficulties, swallowing issues- just to name a few of the horrible things MS does to us. . 3. Mavenclad. This is less effective than either of the top 2 listed above but better than all the rest in the field. . The EMA is starting to restrict access to Lemtrada and BMT May only be available at a few centers (don’t bother traveling for BMT- they are not using the strong BEAM protocol in other countries the last time I checked). . So do the investigation in your area about your options. I will help in any way I can. I hate to see a young person unnecessarily face the grim effects of MS that those of us who are older have had to. Your MS deterioration is highly preventable at this stage- seize the opportunity to live a normal life! . Take care, Emma

@Stumbler

Hi @ danielle24 . Be careful of using Dr Google. You need to avoid the horror stories, so stick with reputable websites like the MS Trust and MS Society. Otherwise, live healthily, eat healthily and, most importantly, avoid stress.