Last reply 6 days ago
New to all of this

Hi I was recently diagnosed with MS in August and I’ve had 3 relapses since. I have small kids so some days are extremely hard to do anything and I feel so helpless like I’m letting my kids down.. sometimes it seems like my own husband doesn’t understand and just says nothing is wrong with me even though he’s seem my mri scans of my brain and back, been to each hospital visit and appt even when I couldn’t walk for 3 months.. sorry just needed to vent. ☹️

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beshrp1
1 week ago

@pittsmommyx2- Im so sorry about the diagnosis! I encourage you to be patient with yourself as you heal and adjust. Also be sure to take care of you more( rest, bubble bath, ask for help, research, etc) there’s no shame. It is what it is. I trust the meds will help immensely.! And you can’t let your babies down, you’re the mama. Extra snuggle times or readjust to books, and movies. Quiet times if possible. Just keep loving on em! You got this girl!! Take care and be well!❤️😊


pittsmommyx2
1 week ago

@beshrpl thanks so much girl ! 🧡💪🏼


jujub070807
1 week ago

Hi hun. Stay strong. I was diagnosed two years ago and it was a hard transition.. until now sometimes my husband doesn’t understand when I’m “tired” from my MS… and even if I’ve been sitting down all day. I ask him to research about having a spouse with MS AND he seems to understand it more better. Find some time to relax and give yourself me time 🙂


watsoncraig
6 days ago

Hi @pittsmommyx2 It can de difficult to understand this thing as we are all did with varying symptoms. Time and patience are required


emzxx
6 days ago

Hi hun stay strong, I have small children aswell and I know what you mean but you are not letting them down , you are doing a fab job raising children aswell as dealing with this.Give yourself some time and relax when you can always here if u need a chat ❤😊 xx


pittsmommyx2
6 days ago

@emzxxx @watsoncraig @jujub070807 thank u all so much


beshrp1
6 days ago

@pittsmommyx2- I’ve had MS for 27 years…. when I worked full time ( until 3 years ago) and my 4 sons were little, life was a blur. I’m grateful now I have time, and often need to; relax. But I used to be on Modafinil/ Alertec. To fight fatigue. It’s not recognized in 🇨🇦(Where I reside) as an MS drug and I had to pay for it. So worth it. After my last relapse, it just gives me headaches now but it worked great for me in that season. Maybe worth discussing with your MS Nurse?


vixen
6 days ago

Hello @pittsmommyx2, yep, we’ve all been there and it’s tough. But, we’ve all gotten over and last it too, and so will you. This has been a shock for you and hubby, not the way you thought your life would be heading. It’s hard to take time to listen to your body when you’re a mum, but you have to do that in order to be the best mum you can. Don’t struggle to prove you can do things, accept all help offered and available. You will start to fall into a new routine, but at the moment your, your body and your head are adjusting to this massive news. So slow down, deep breath, rest as much as possible. Eat well, don’t smoke, and exercise when and if you can. You will be fine and dandy, you have lots of support here x

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