@matus82 

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matus82

new symptoms.. yet no MRI activity ?!

Hello, so I thought I would highlight what seems to be happening to me lately. few weeks ago I had a follow up MRI of my brain since discovering 6 non active lesions last year. The results are good ( no new lesions and no inflammation seen). Yet I am getting new symptoms. They are very mild, but since about 2-3 weeks ago I am getting the following: mild pain behind my eyes ( usually during the evenings or mornings). a mild tightness under my calf muscles ( spasticity??) - not effecting my walking or coordination at the moment, but is present since about a week ago. tingling in my left toe ( comes and goes during the day) tingling in my right wrist since I am still not diagnosed, I personally think this is just a matter of time, but what I am trying to understand is if I am shifting to a PPMS or RRMS.. because I cannot identify a relapse. So my question would be, can you identify the type of MS from symptoms alone or is a MRI/Spinal Tap the only way to diagnose it? Because over the course of 2017 and until now , I am getting different symptoms (some come and go and some stay), but no activity on the MRI/spinal tap of both head and spine. My neuro therefore stands by the fact that I do not have MS, as I am not right now meeting McDonald criteria But here are all the symptoms I had since 2017: -heat intolerance ( getting sweaty more quickly - this is persistent) -bladder issues ( frequency of urination increased - this is also persistent) -mildly tired over the course of the day ( comes and goes) -tingling in my hands that last a few minutes in the mornings (comes and goes) -had 3x blurry vision in one eye for few minutes and went away over the course of 2017 -muscle spasms randomly over the body ( lasts few minutes and disappears and comes and goes) pain in the back of my eyes - few times a week comes and goes and lasts under a hour. It looks like quite a few symptoms therefore I do not believe it is just not related.Anyone experience something similar or is there any theory what might be happening here?
@isaacson72

I'm no doctor so I can't say for sure, but the eye pain you are describing could be dry eye. I have dry eye and those are the same things I experience. Sometimes stabbing pain behind my eye, other times just achy pain behind the eye. Could be a sinus issue too. I always think it's MS and go to the eye doctor who looks closely at my optic nerve -- it always looks great (knock on wood). It's just dry eye or a sinus infection, for me. Not saying that's it for you, I'm just saying it's not always ms! :) But for the rest of your symptoms, I don't know. I wish I could help, I know the uncertainty is awful.

@Stumbler

@matus82 , unfortunately, MRI scans do not show the full picture. And, that's dependent on the strength of the scanner. These present symptoms, are they new to you or are they recurrences of older symptoms? It could be residual damage from the existing relapses. If it is residual damage, then it could just be "grumbling" to indicate it's not happy with you. So, are you stressed or over-tired, to bring this on? As to your lack of a diagnosis, the McDonald criteria (https://www.mstrust.org.uk/a-z/mcdonald-criteria) were revised last year. I wouldn't get concerned regarding what type of MS at this stage.