Last reply 3 weeks ago
New member

Hi all, I’m new to this site. I feel a slight veteran as I was diagnosed in 1992 aged 20 ( 1st episode aged 15) so have lived with it all my adult life, I’m now 48!
so if I can help with anything please ask!

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ralee
1 month ago

Welcome @ladylaura, how has you MS been in that time and do you have any words of wisdom for us newbies?


ladylaura
1 month ago

Hi @ ralee, my 1st words of wisdom is ‘learn your body’. Meaning if something doesn’t feel right don’t ignore it. In my younger days my body would start feel heavy, meaning take a rest, but I just carried on, working, raving, cycling. Then BOOM!! body shut down, in bed for a week.
2nd is learn to say ‘maybe’..you can’t do all the things you used to. Don’t feel guilty if you have to cancel plans at the last minute. So I reply “maybe” invites.

3rd it’s ok to feel shitty!😂

After 30 years, I still get down, I’m still get angry, I still feel ‘why me?’, I still feel guilty than I’m not bad I’ll as a fellow sufferer. everyone is different.

Hope this helps, I could go on forever!


vixen
1 month ago

@ladylaura, what a great attitude to have after nearly three decades! I think this site was created to support the newly-diagnosed, but there are also folk who are ‘dab hands’ at this malarky, and this input is invaluable. I am between the two, an older person (50) when first diagnosed. Thanks for inspiring! 🙂


ladylaura
1 month ago

@vixen, thank you. You are all very lucky to have these sites. I actually got quite emotional when I heard about shift.ms, as I struggle with nothing! not even any treatments. So I thought I’d might be able to help with experience. many lows but loads of highs!

Attitude is 1 of the best medicine!


vahni
3 weeks ago

@ladylaura is it certain foods you’ve stop or continued eating since your diagnosis?


ladylaura
3 weeks ago

@vahni I’ve tried many different diets.. gluten free, vegan, protein..to be honest it’s really an individual thing..I found more protein helps me but a fellow mser swears by gluten free..it’s another 1 of those trial n error thing, like meds 🙄

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