Last reply 3 months ago
New medication

Hi, I am on Tecfidera & have been for nearly 3 years, it’s been good coped well with the slight side effects. My consultant wants me to change to the new drug Ocrelizumab, , which is administered twice a year by drip, taking 3-5 hours.
Is anyone else on this drug ? How is it ?
Quite nervous to start because of side effects & like anyone don’t like change !


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3 months ago

I’m in a similar boat – Tecfidera for four years, and my immune system has taken a bit of a pounding. Had to go to a private neuro to get a Fampridine scrip’ (postcode lottery it appears), and he suggested Ocre-whatsit-man too. I whined about PML. He said that he likened my situation to diminishing resources in a pension pot, so that now we’d have to spend capitol. In other words: I’ve used up all my chances and the next relapse may take something I can’t afford to give. For this reason he said – treat aggressively. I wish you luck; I’ll be switching in November when I next see my NHS neuro, or to Cladribine if she refuses

3 months ago

Jomartin, whilst I was on Tecfidera my immune system collapsed and I contracted the JC virus, I was taken off it and had to wait a while, I was offered an alternative but declined and using CBD oil. I know sooner or later I will need something.
I accept that all sufferers are different and would advise listening to the experts but at the same time look for other opinions, I am sure you will have more on here as this is a great home for advice.
Good luck

3 months ago

@jomartin , an “Ocrevus” tag has been added automatically to the foot of your original post above.

Selecting this tag will locate all the previous conversations regarding Ocrevus (Ocrelizumab)

3 months ago

I did exactly that. 7y on Tec and then to Oc this Jan. I skipped out of my first infusion knowing there were no more pills!

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