@Kat_Merritt 

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Kat_Merritt

New and confused

Hello, I've recently been diagnosed with primary progressive multiple sclerosis and even though it explains why I'm in agony and tired all the time, I haven't been offered any help or support of what I expect or how to deal with it. My family aren't the sort to offer help or support. My partner has his own problems and doesn't do apathy and my kids are all to young, plus I wouldn't put this on them anyway. I don't how I feel about any of it, or who to speak to.
@Vixen

Hello @kat_merritt, well, you’ve come to the right place! Everyone here will understand the shock of diagnosis and everything it brings along with it. It would be helpful if you could say where you are, so panoply can chip in with ideas. Also, what sort of pain you’re in, ie, whereabouts. It’s important that you feel what you feel, and focus on resting as much as you can. You e taken a positive step in expressing your thoughts on here x

@potter

Welcome to the forum you can rant and rave here and we might even join you. Have you talked to your MS nurse about a therapist. If you belong to a church you could talk to your minister. Knowing what part of the world you live in would be very helpful. It seems like each country treats MS patients differently. I live in the US and there isn't much help here, I just read that we have over a million people with MS in the US. Try not to stress about people not caring or helping that is just the way it is. My son rarely calls me and never asks me how am I doing. My husband gets annoyed with me because my cognitive skills are a little slow. My mother in-law doesn't believe I have MS, I have one sister who tries to understand but she lives 2,000 miles from me. We are all in the same boat and have to depend on each other on the forum. Potter