@RachaelLouise 

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RachaelLouise

Neurologists and guidelines

Anyone have a fab neurologist who they are willing to recommend .. I am interested You know ones who will work with you , positive proactive , open minded , I will travel to find one ! Rachael. X
@cameron

How far are you prepared to travel? I see you're in Clitheroe, so if you didn't want to go further than (say) Manchester, you could post here asking for names of good neuros there and get names via PMs on the site (we can't post names publicly). People who don't understand how poor our facilities are locally think I'm mad to travel to London, It's a two-hour journey but I don't go particularly often: where possible, the staff at Queen Square combine appointments for me and other times we are in contact via the phone. But the effort in travel is far, far less than the struggle I would have faced locally. I was determined to be seen in a centre of excellence - there are many outside London but you'll need local knowledge and recommendations. It's not just having one good neuro - it's how the MS service is set up, the philosophy of the department, how good their patient communications are and the quality of the MS nurses. That's important because under NHS guidelines, you can be treated anywhere in England but you can't choose your consultant. If the department is 'solid', it won't matter who you see within it because they'll share the guiding principles. That's why teaching hospitals are often the most successful and forward-looking - consultants are likely to be involved in research and will be top of their game. That's what we want!

@RachaelLouise

@cameron Yeh good idea I might do that then I wasn’t aware that you couldn’t post about neurologists on here , so hopefully people will pm me. I am with a teaching hospital but the communications etc are bad, waiting times bad ., a lot of things are bad admin etc . I think I might need a team locally and I’m frustrated with it My nhs neurologist I like him but snowed under so hard to ask the things I want as not the time and I’m not sure wether he’s on the same wavelength as me or not really . The Neurologist guy I saw the other day is part of the same team but was private . I don’t think we are on the same wavelength at all I want them to be positive with me and give me a sense of “hope” not “life’s over” which I feel that vibe . He says stem cells can kill you etc true but I don’t want to here that ! The evidence is very low like what Paul Morrison said whose just come back from Russia ! Why be so pessimistic like that? Why not mention positive things about stem cell S too ? It’s frustrating when your living with this condition it is ! I get fed up of the negativity and pessimism . Give us hope not fear ! Like you said also want people top Of game who get it to help ! Where do you travel from to see yours ? Are you near London then? I might have to pay to see neurologist but locally I might need a nhs team for ms . I wonder who I could see thats a good neurologist that I could pay to see . I might have to travel but maybe need too . I’m looking for someone who optimistic , proactive positive towards it .., not everything they focus on is the negative in it ! Like it can’t be done . I just want to get it sorted so I feel more confident and less worried about it all . Rachael x