Last reply 7 months ago
Need some advice😁

Im going to find out what type of ms I have soon the wait has been torture I do not have problems with mobility just last year it really flared up tingiling and spasms, thats really died down and now ive had this lingering dizziness and vision slighlty off on and off for the last 2 months, I know ive had ms at leat 10 years and was not aware of it I am either relapsing or secondary,is it the end of the world to be diagnosed with secondary ms? do u have a better chance with this illness being diagnosed with relapsing ms?, do any of you have secondary ms and have no mobility issues and living life well working ect? My ms nurse said when people here secondary thy panick and shouldnt do you agree with her? Lol sorry for the 21 questions. X

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stumbler
7 months ago

@melmel1 , it does sound like that you have Relapsing/Remitting MS (RRMS). You have periods of symptoms from which you then recover. That’s just my opinion from what you’ve said.

Is it the end of the world to be diagnosed with Secondary Progressive MS (SPMS)? Well, that’s a matter of personal opinion too. No two cases are the same. What one person finds tolerable is another person’s nightmare.

You are better off being RRMS as you’re earlier in the condition’s progress. This can be slowed down, or even halted, with the use of medication. There are presently no medications for Progressive forms of MS.

I was still working when it was decided that I had transitioned to SPMS. I worked for a further 6 years. And, now a further 12 years down the line, I am still walking around the house, thanks to walls and furniture. Going outside is a different story, where a wheelchair is required.


melmel1
7 months ago

@stumbler thank you I really hope your right your the King on here😘


nutshell88
7 months ago

I got the same symptoms you’re suffering in 2010 and more
But they all recovered now
Ive had MS since 2004 felt it since 4 years old or so
And im still relapsing remitting
In 2010 i was getting symptom monthly but they all stopped after a year or couple of years now once every year or less
Worst thing wifh MS is panicking and thinking about it a lot
Did they tell you you developped atrophy
I did in 2014 and still rrms 😉 hope you’re the same


melmel1
7 months ago

@nutshell88 thank you for reply do you mind me asking how old you are ?sounds like you have had ms for a while like me , I don’t have muscle atrophy that I’m aware of yes I do have to stop stressing X

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