Last reply 2 months ago
Need a little advice/personal experience

Hey guys.
It’s been a few weeks since I posted, I was diagnosed with rrms in January and was supposed to be starting ocervus, but due to the damn covid 19 that’s hasn’t been possible. So I’ve been waiting to hear back from my ms nurse about what will happen next, I’ve been suffering quite bad with pain in my eye and headaches along with numbers and tingling and fatique. I’ve had optic neuritis before (that’s how they found my ms) and had it all checked and the eye docs seem ok with my eyes so my first question is do people still suffer with pain etc even if the neuritis is under control?? Being new to ms I have no idea. My second question is who is on natalizumab, my ms nurse called me today to discuss starting my treatment as they really don’t want to leave me without treatment any longer, I didn’t originally chose this treatment, but like I said due to to virus things have changed. I just want to know how people who are on this one find it? I’m a little nervous as o kinda got my head round ocrevus and now all changed again ☹️
Thanks guys x

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2 months ago

Hi under your post above you’ll see some boxes relating to some of the subjects you mentioned.
Click on them and it’ll take you to other posts made about it.
natalizumab I’d also known as Tysabri.
You could ask your MS nurse or GP and ask them about meds like Pregabilin or Gabapentin which helps to reduce the pins and needles.
Hope this helps you out a little.

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