Last reply 2 months ago
Multiple sclerosis

I was diagnosed in 2009 when I was 19 to 20 years old and I didn’t know what to do so I locked myself up in the bedroom and started crying because I didn’t want multiple sclerosis because I didn’t want the pain now I am always in pain 24/7 none stop and sometimes two of my fingers on both hands go num out of no where and I can’t feel them it does bother me and I am not on any treatment for multiple sclerosis because my hair falls out of my head so I just deal with the pain the heat doesn’t make any easier on me

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2 months ago

Hello @people, since you were diagnosed things have moved on a fair bit in the medical world. Have you recently had a check up? If not, maybe you should have a chat with your team. Nobody should be inas much pain as you, so take the lead and push for help!

2 months ago

Whew! 10 years is a long time. Are you able to get out at all? I hope you are able to meet & talk & enjoy life with other folks who would benefit from your focus & attention. Do you have some hobbies you enjoy? MS sucks but as @grandma says, I hope you won’t let the monster win! 🥊🥊🥊

2 months ago

I’m also in a a lot of pain most of the time. Do you see a pain specialist at all? Or have you tried physical therapy?

2 months ago

I haven’t done anything because the health insurance doesn’t want to cover anything

2 months ago

Are you in america?

2 months ago

Yes I am

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