Last reply 2 months ago
MS’ers in Glasgow

Hi 👋🏼 I am Emma and I’m still in the process of being diagnosed. It’s been nearly two months since my last neurologist app. Who took blood to test for NMO and other MS mimics. I’ve heard nothing. I was to be forwarded to an MS consultant, I’ve also heard nothing. Just wondering how long this takes? I was on an acute referral because I ended up in the hospital in August with bad double vision but now I just feel I’m slipping through the cracks. Is anyone here from Glasgow and knows how long this takes? Also how good are they? I will be referred to the QEUH which I’m told is a good place for neurology. I just want this ball rolling with treatment options like everyone else. Had scans of my neck, spine, head and eyes, numerous blood tests and lumbar puncture (negative) so I feel that I’m almost at the other end of the tunnel! Thanks, Emma 🙂

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highlander
3 months ago

@emma_t
Welcome to the club.
Your in the hurry up and wait stage…
From reading your post it won’t be too long before they give you a definitive answer.
Keep chasing them up, but be nice to them, flattery works wonders.
Nothing is going to change that much Meds or no Meds
We’re all here to help each other out if we can.
Welcome again.


emma_t
3 months ago

@highlander thanks for your reply. Yeah I know I’m in this waiting around stage which is frustrating! It would be good to know what I’m getting into as is seems that some places are better than others.. I will enquire politely if I don’t hear anything in the next week 🙂. Thanks for the welcome, you all seem like a helpful bunch!

Emma


stevenh67
2 months ago

Hi,

I also attend QEUH. Took from initial illness in October 2016 to January 2019 for official diagnosis of MS. Had numerous MRIs and lumber puncture. Always found the team there excellent, other than the occasional what seems like an eternity for an MRI result. I wish you all the best in your MS journey.


emma_t
2 months ago

Thanks @stevenh67 since this post, I have a consultant appointment through for the 23rd of this month Dr Stewart Webb?? Anyway Yeah I’ve heard nothing about my spine MRI it’s hard to just sit here and wonder what’s going on but I’m just plodding on, going to work and getting on with things. Wow over 2 years you were waiting, least you have a diagnosis now. I know we all have a road to diagnosis so hopefully some answers soon, good to know I will be in good care 🙂

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