@n3tm4n 

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n3tm4n

MS Progressing as expected ?

1998 I lost vision in my left eye for a period of time. Dr said it was a virus. 2003 I was suffering with balance problems. Dr said a lot of people suffer with balance problems. 2008 I was off work for 5 months following catching Chicken Pox. Dr said it could be ME, but eventually it will pass. 2015 had some hearing problems. Had a MRI scan which found some lesions. No further treatment. 2016 I again was suffering balance problems and aches. Dr couldn't find anything wrong. 2017 More pain, balance and struggling to walk normally. Dr couldn't find anything wrong. 2018 Continued balance and walking problems with aches. Dr referred me to Neurology. Dec 2018 had Neurology Consultation. Dr did numerous examinations before advising me I had SPMS. Jan 2019 had a spine and head MRI to rule out anything other than MS. Since the diagnosis, I seem to be deteriorating quickly. I am not only able to walk for 5-10 mins before having to stop. I struggle to stand and walk upright, my waist seems to be disconnected, and its all I can do to remain upright. I feel as if the Health Service has let me down, and I'm still struggling to find answers. I guess my first simple question, is this a typical story of a MS journey. My second question is how do you deal with the uncertainty of the future / work / mobility etc. I am normally fairly upbeat, but seem to be on a downer right now. I'm not after sympathy, just trying to get a grasp of where I am and what my future may hold. Just typing this out has helped me think a bit clearer, but welcome to hear your views.
@Highlander

WOW did we have the same doctors? Your Not to different as to me. It's all good fun ain't it 🤣

@wobbleone

My memories gone now too, I don’t even remember typing the above.. 🙄 I’m not quite SPMS though, I just snuck in on the RRMS diagnosis. Get referred to a neuro rehabilitation physio if you haven’t already to try and help you with your mobility. Sadly your tale is all too common. 🙄