MS & ME
I don’t think I need advise I think more reassurance.
My neurologist thinks I’ve had progressive ms for about 4 and a half years. I’m not on any big bad helpful drugs I take painkillers and a load of vitamins/ iron/ CBD oils/magnesium etc.
I presume they’re doing something!
Oh I’m on 3monthly steroids, which either spit around your body tidying up or give you a daily ache! And a different one every day. I live alone with a dog. I just have to hope the progression is slow
Well that’s me!
There are several DMTs approved for progressive MS now...have you tried or discussed any of them?
No I haven’t. I make an appointment with my doc but by the time my appointment comes 1- I forget why I got the appointment 2- even if I write things down I can’t find it 3-the reason I got the appointment isn’t happening or hurting or knocking my balance! Now it’s been said I’ve written it down & ive got docs next Friday