MS & Epilepsy
Hello Everyone xx
I have been living with MS since 2012 and started seizing in 2015 - recently the seizures have worsened and they are now diagnosing me with MS & Epilepsy.
2-5% of us with MS with develop Epilepsy as well - lucky me.
I’m looking for support from anyone else that is part of this 2-5% - I would like to know how you are managing both illnesses - more specifically the aftermath from the seizures - postictal psychosis is what I am experiencing - and the MS pain on top of that - Unfortunately I am also unable to be medicated atm it’s all kinds of fun over here xx
Thank you for reading and your support xx
Hi @healingjamie and welcome. I only suffer from MS as I do try to not to be greedy! 😉 But, if you were to enter "epilepsy" into the Forum Search function (magnifying glass, top left), that will confirm that you're not alone. PS I love your T-shirt. 👍
@healingjamie I’m one of the lucky ones with MS and temporal lobe epilepsy, epilepsy probably due to a lesion in my temporal lobe. They don’t like to draw firm conclusions but makes sense based on MRI. I’m medicated with 500mg Keppra twice a day to stop my simple partial seizures, basically so I can drive. The seizures are pretty invisible to others. Deja vu, impending doom, nausea, tingly arms and spaced out for the day. No fits. I’ve just had a lumbar puncture and getting a new MRI on Saturday to try and pin this MS diagnosis down. I don’t take meds for MS. It’s been 20+ years since optic neuritis and no relapse. I guess I am pretty lucky actually. Are you on medication for epilepsy now?