Last reply 5 months ago
MS difficulty

I am so tired of not know what is going on. I’ve known for like 24 years. That I have ms. But I seem to not get any help with it. I go to medical dr he says it’s ms. I go to neurologist he says it something else causing stuff. Meaning I have it but it seems stable. So I have been diagnosed with several other things also. So why can no one agree and help me?

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5 months ago

I’m answering to say- Welcome to shiftms. I think you have to be persistent and say what you’ve posted here to the neuro. Peeps on here say the same sort of thing but neurological things take ages to DX. Be persistent!!!!!! xx

5 months ago

Hi @kimberly_a_napier .

Your Doctor and Neurologist really need to have a chat with one another to agree a diagnosis.

Neurology is a wide subject and it could just be that your Neuro’s speciality lies elsewhere. Would you be able to get a referral to an MS Specialist, to get a definitive diagnosis?

5 months ago

I was diagnosed with ms 2004 cornea problem 2005 its linked to marfan syndrome my skeleton is 99% marfan joints and all except heart and high

imm’ve always been fed up with MS I’ll do a genetic test to find out whats going on with this body really 😒

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