@Nikki_Jones 

Last reply

Nikki_Jones

MS and sleep

Hi, New to this site so hopeful of a good response. I have Relapsing Remitting MS although I don’t see too much of the Remitting part. I am a positive person day to day so posting anything remotely negative is hard for me but I realise I need some perspective now any any comments will be gratefully received. I have now had 3 treatments of Alemtuzeamab (prev lemtrada) over 4 years and since the first treatment I have suffered with Insomnia. Since the last treatment in November 2018 it has got beyond my control. I have been prescribed sleeping tablets, zopiclone and opioid tablets such as diazepam and tamazepam but nothing is working. My MS team won’t relate my insomnia to any treatment I have received and won’t relate it to just the fact I have MS as my brain lesions are not in the area that would affect sleep. I have taken part in a sleep study where I had electrodes glued to my head back in December 2018 but am still awaiting results. (No consultant available to read results) I would be grateful if anyone could offer me any type of help, support, explanations or advice as I am now near to the point of desperation. Thank you
@Highlander

@nikki_jones Hi and welcome to the club! I've met a fellow insomniac! Not good fun I know. We're all a friendly bunch here. Feel free to ask anything you like we'll find an answer so way or another. Welcome again

@RMDaniels

@nikki_jones Hi lady & welcome! Have u had a thorough check of your hormones? I don’t have insomnia all the time, but I think my sleep issues are from menopause (started early due to hysterectomy). I refuse to take hormones, but bloodwork shows I really need them.