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@DanR 

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DanR

MS and Bells Palsy?!

So, a year and 3 months down the line being diagnosed with “inactive MS” being put on Avonex to then be taken off it 4 months later as It made me very ill and since being off treatment I have had 5 new lesions and all types of new relapses (fizzy feeling in my spine, MS hug, constant tingling) I now have also been diagnosed with Bells Palsy on top of it all, has anyone else experienced Bells Palsy with MS?? Feeling rather fed up now since they stopped my treatment in October and still waiting on finding the right one 😪
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@Bas76
@Bas76
 

Hi @danr I was diagnosed in 2016, my first symptom was Bell’s palsy but at the time we thought it was just that and did not suspect MS until I got double vision about 6 weeks later. But in terms of the Bells Palsy I was given a course of steroids to take over about a 5 day period. Within 3 weeks I was back to normal, I was examined at my local hospital after going to A&E and they prescribed the steroids and did follow up a few weeks later to see if recovery was okay.

@Bas76
@Bas76
 

Oh yes I forgot to mention I was also put on Avonex which I started at the beginning of 2017, would inject on a Friday and my whole weekend was spent in bed then back to work Monday. Was like that for 6 months then my body seemed to get used to it and it wasn’t too bad got my weekends back. Unfortunately In November caught the flew and then had a relapse. Was suggested I change meds after an MRI showed new lesions, was put on a med called Cladribine which gradually decreases white blood cells in the hope it stops the progression. The great thing is don’t have to inject it was just a couple tablets for three days and that’s it for the year! Fingers crossed! Don’t get me wrong I it wasn’t easy getting my Neuro to take me seriously and I have moorfields eye hospital to thank as they were able to provide scans which showed new nerve damage to my eye which supported my complaints of not feeling well. Keep on them, and ask about alternative meds as I have heard more than one person on this forum say Avonex isn’t that great/successful.