@melmel1 

Last reply

melmel1

More waitingggggg

Hi everyone I was diagnosed by a neurologist after having a Mri as having Ms In October 2018 and after a 3 month wait today was the day I had been finally waiting for and was meeting my Ms specialist neurologist for the first time which I assumed I would be told what type of MS I have and a look at medications, then he did all the normal physical tests and looked in eyes, and showed me my scan and said I have a few small lesions on brain and one in neck and even though he thinks it's MS he wants to be totally sure and wants to repeat my Mri and now do a lumber puncture, I couldn't believe it everything is such a long wait, he feels some of my symptoms are Ms and some are not, I told him my eyes have been blurred on and off last couple months, and all the other symptoms I have had, every time Ive had a eye flare up and had a appointment with opticians thy dnt see inflammation he said that's strange, He said he wants to do all these tests to be sure, and he does not have a next free appoitment until July, he said he'll write to me my results of blood tests and lumber puncture and Mri but he can't physically see me till in 6 months time as he's so booked up to discuss ms and if I need drugs or if it's a wait and see approach I couldn't believe it ,I have a ms nurse which I'll see in April,I've really called around a lot of people in London about if these waiting times are normal and about possibly changing neuros, but IVe been assured by quite a few people my neurologist is very well known and very good at what he does, I was a lil bit surprised when he said we will see if you need treatment or if it's more of a wait and see approach, I just had to say to him well do u have a idea what stage it would be if its definitely ms, he said prob relapsing,what are you thoughts everyone? I'm just scared that the ms will get worst and all these delays are not good, I've been told to stop stressing as I am really bad at that and I have put on a lot of weight last year which I need to get off and wondering if that is contributing to my symptoms? I'm Frustrated did but going to try and calm down think I have no choice. Thank you X X
@Stumbler

@melmel1 , it is a frustrating situation, but you're not the first one to go through it. In order to formally give you a diagnosis, our medical professionals have to be absolutely certain. A diagnosis, once given, can't be un-given. So, yes, do try and calm down. That would be the best treatment for you at this time. 😉

@melmel1

@stumbler Thank you, I need to stay calm and have a cup of tea lol X