Last reply 3 months ago
Medicine and Marathons

Hi guys, hope you’re all well.

I met with my neuro last week and we discussed starting coxapone/rebif. Basically an injectable. I’m currently not on any medication. I’m going for lumber puncture, bloods etc with the hope of making a finial decision and starting in 4 months, which would be around September time. BUT I’ve been training for the Dublin marathon which will be October time. Am I totally naive to think it would be even possible a month into new medication? As strange as it is, I’m the fittest I’ve ever been. I’m scared if I wait another year to run I could have relapse but be unable to.

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3 months ago

@katrinaf93 , as we’ve said many times. any Disease Modifying Therapy (DMT) must fit into your lifestyle.

The obvious answer here is to run the marathon and then start the DMT. I’m sure your Neuro would understand and support you.

3 months ago

I struggled with an upset stomach when I first went on Gilenya. This lasted probably no more than a week. Everybody is different, though!

3 months ago

I am a runner and have been on Rebif for the last 9 months. I know everyone reacts differently to the meds but from my experience you should still be able to run your marathon on the meds. I inject 3 x times a week at night and have never missed a run because of the meds. Just take it one day at a time and see how you feel.

3 months ago

Hi @katrinaf93.
I’ve been on Copaxone for almost 2 years and I haven’t experienced any side effect at all. The injection though could be annoying for some people, it depends on how skinny you are and on your reaction to the drug itself. For me it’s not a bid deal: I usually inject myself early in the morning and a couple of hours later I can run and do sports.
I think you should give it a try: start your medicine and see how you feel. If after a couple of injection you think that it stops you from running, you can take a break and start again after the marathon.

Good luck!

3 months ago

Hi, just ran into this site looking for info on doing sports with MS. If you are used to some level of fitness and don’t want to give up on that, i’d go for Copaxone. I ride a bike a lot and do some races and after starting Rebif it just went downhill. The flu like side effects were bearable, but generally i was more tired than I should be and lost much of my strength (not due to MS as I was quite alright with MS before rebif). After a year on Rebif I switched to Copaxone and just a few days after, I felt much much better, like turning off handbrake that was on for a year. I know the effects differ from p2p but if I had to make a choice with what I know now, I would go for copaxone 100%. Hope this helps a little 🙂

3 months ago

Like mentioned, everyone’s different but I was really worried about side effects when I first stared taking Rebif. I had just started a new job and was doing a lot of commuting and didn’t want it to get in the way. I ended up having very minor side effects and as long as I took some ibuprofen before a shot, I felt fine the next day. Just a little achey here and there! These side effects went away all together after about two months. Most likely, you will do fine but with everyone being different with it, it might be hard to tell! Good luck as you think it through!

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