@Jaylee 

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Jaylee

medication?

What medication is out there for primary progressive ms. I got diagnosed when I was 29 I’m now 33 and still had no meds only thing they tell me that will help with the pain is ketamine so what do I do? I’m everywhere with it at the moment I’ve got 3 lovely boys and a gorgeous woman but I feel like I’m a burden on everyone because I’m unable to do what all the other dads can doing. So if anyone knows out let us know nice1
@Vixen

Good morning @jaylee. In terms of DMDs, PPMS folk are now in the running for the first time with Ocrevus, which is hopefully going to be approved in the U.K. Yesterday @stumbler posted a link titled ‘Good news for progressive MSers’ which you will find if you scroll down a bit further. I’m sure others will post ideas for medication. Is there one aspect In particular you struggle with?

@Jaylee

My mobility went first that took about 5 to 7 yrs but since my diagnosies 4 yrs ago I’m feeling all my upper body going with jiggers and weakness and thers nothing over in uk for ppms