@DominicS 

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DominicS

Magic Wand Time - help please

Hello fellow Shifters, I shan't bore you with details. I was at a meeting recently about the variance in provision of MS services in the UK. If you had to choose one thing - just one - to improve, what would it be? When I was diagnosed in 1994 at 25y old I was just cut loose with nothing at all. So I did what any self-respecting person does and just ignored it and hoped it would go away. A few examples to kick off: Communications with your nurse? Time between diagnosis and treatment? Better leadership on drug choice? Local patient networks? A single point of contact to steer you through this new reality? And so on. It doesn't have to be any of the above. I am interested in what patients (us) want. Thanks in advance for taking the time to think about it and share your ideas.
@PetLamb

@dominics For me it's definitely time between diagnosis and treatment. I had my CIS (Optic Neuritis) in 1997 at 30 years old. Diagnosis was in 2001. I then had no treatment until about 2007. Years wasted. : ( Suze

@DominicS

@petlamb - so what part of the system, or lack thereof, do you feel made or contributed to that?