Last reply 2 weeks ago
Low testosterone and ms

Has anyone ever been prescribed testosterone or taken it? I’ve been reading people with ms tend to have lower test levels. I know symptoms of ms tie in with the symptoms of low test. I’m almost certain my levels are on the low side. So I’m going to see my GP about what he can do for me. Is this something my neurologist could help me out with? I’m a young active adult, low testosterone is something I shouldn’t be experiencing. Has anyone ever been prescribed or went their own ways of acquiring it.

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mattw
1 month ago

Firstly I’ll apologise for no introductory post yet, I will get around to it.
I was like you, fairly sure I had low T levels, so went to my GP to get bloods. Sure enough, I do. I had my first injection of testosterone last week and will let you know how I go. (I am a 42 year old male)
I cannot believe there has been no mention of this from ‘my’ ms team, especially give the very clear link between ms and hormones.
Anyway, stay strong and find your own path…..with knowledgeable guidance, obviously

hi – @mattw , which country do you live in?
I’m curious because I raised this with my gp, whoe sent me for bloods, which showed borderline T, and was then sent through a bunch of ‘could be m.s related/could be depression’ type obstacles.

I’m in the UK, and have sort of given up pursuing this.

it’s reached a point that I’m considering going off-track to source… but that’s a who;e other dark place!

i’ve been trying to get something done on the nhs for about 6 years, on and off, but who has the energy to keep the pressure up?

…. no pun intended


mattw
1 month ago

Hi @poorusernamechoice (lol)
I am in Scotland. My GP’s are much more helpful than the ms team tbh. I was refered to urology following bloods and prescribed testosterone injections by them. Just a waiting game now to see if it helps with symptoms, so I’ll have to be patient to see what is down to ms and what is down to low T.
6 years is a long wait tho pal, been about a year for me, which feels like a lifetime. I’ll let you know how I go.

cheers, and good luck with it.
I might have to kick up a fuss again, when i get a minute!


arknat
1 month ago

Had a low T as well. Not sure which causes what … whether MS causes low T or if low T may play a part to cause MS.

My Neuro suggested a lesion could have caused a pituitary malfunction that may have interfered with the T levels. Was then referred to a Urologist who then performed appropriate tests and provided some options to raise the T-levels (injections, patch etc.)


lukezni
1 month ago

@poorusernamechoice I’m also border line but because I’m not low it’s seen as ‘normal levels’ maybe normal but not for someone my age (26) and I’m a really active person. So he linked it all to depression even tho i know myself I do not suffer from depression. I was quickly offered anti depressants right away without hesitation but didn’t even give testosterone a thought, ignoring the underlying issue which is border line T. he told me to try the anti depressants and come back in 4 weeks, I’m due to go back on Friday to tell him how they have not helped all symptoms


Anonymous
1 month ago

Hi boys! @ mattw, @poorusernamechoice🤣, @arknat, @lukezni etc

Well I’m secondary progressive and finding apathy a big problem, so I did a bit of research and discovered that another thing they don’t tell you; is that MS can cause low dopamine levels (cheers for not telling us or addressing that either…) .

https://restorativehealthsolutions.com/autoimmune-disease/multiple-sclerosis-what-can-i-do/

.(bear with me, this is relevant to testosterone) grrr

I did a lot of research and as a result, I’ve been taking a natural form of dopamine – ‘macura puriens’ Less than a week ; and I’m starting to feel back to my old self already! (I know !)

Which in turn, has helped me to cope with the physical things a lot better…it’s really incredible how much better I feel emotionally FYI (I’ve been a mess)

But this magic bean also raises testosterone! I got my best friend (who is a boy/man/rock) on it for that very compelling reason, so I saw your post and thought I’d share

we all need testosterone and a bit of dopamine – girls and bro’s !

https://superfoodprofiles.com/mucuna-pruriens-benefits-uses

Good luck everyone ✨♥️✨


Anonymous
1 month ago

lukezni
1 month ago

@mermaidia11 happy to see that this has helped you and you are feeling a lot better!! Where did you buy this as it’s something I would be interested in trying

Thanks @mermaidia11 !
that’s not one i’d heard of, but will check it out.
Really appreciate the heads up on this, i’m about willing to try anything! 🙂


Anonymous
1 month ago

@anonymous @mattw, @poorusernamechoice, @arknat, @lukezni – well I’m glad to have discovered this magic bean as I think I’ve had a lack of dopamine for a while- and it increases testosterone, so it’s a double whammy

Anyways…After again doing more research about strengths /types/powder/pill etc
I decided upon one that was rated on another site as the best ratio of dopamine- it’s from magic Amazon- ‘ Now’Dopa Macura it’s about £14 for 90 and I’m taking one a day to start off with – cos I’m a lightweight…(but I have more energy and I’m not cryin every morning anymore, which I have been)..

Let us know how u get on…

And how r u doing on it @merfield?!


arknat
1 month ago

@mermaidia11, thanks for the tip. Waiting to check it out …


lukezni
3 weeks ago

@mattw @arknat hey, can I ask about your blood test results what levels your testosterone was at?


itsmewithms
3 weeks ago

My husband has UC and was diagnosed with low Testosterone as well and he took some medicine for awhile and it never really brought it up. Hopefully you find something that helps for you. The other health issues that come with it are what concerned him and me – so hopefully you find something that works for you. He had a gel he put on his thighs nightly and all it caused was hair loss on his legs…


mattw
2 weeks ago

I feel a bit dim now @lukezni. I didn’t ask what my levels were, I was just told they were borderline. I am seeing the doc next week to discuss my recent bloods re testosterone levels, so I’ll hopefully be able to let you know.
It’s 5 weeks since my first jag, and I do feel a lot better, energy wise. This may be down to getting over a cold, or may be the testosterone injection or a combination of both???


lukezni
2 weeks ago

Thanks for getting back to me @mattw my test results came back almost borderline, which I feel isn’t right for someone my age and physical activity. So after a few GP visits about it and finally being listened to I got referred to endocrinology so now I just have to wait but thankfully I’m getting somewhere about it


arknat
2 weeks ago

@lukezni,

Free T was about 45 (N=47-244)
BioAvailable T was about 87 (130-681)

As you could see both were below normal levels.

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