Lost
I'm gonna give this a try..I was diagnosed with MS 13 years ago, and I almost never talk about it to anyone. I rarely talk to my husband about symptoms, relapses...except to say, " when this gets bad enough just throw me a party, bop me over the head, and throw me over the side of the boat"...(we live on a sailboat) I have always been an active person,..sailing, snowmobiling, back of the motorcycle..yadayada...you get it...Well. I'm slowing down..more and more....My husband and I have plans in a couple of years to go back out cruising on our sailboat. I'm not sure whether I'm going to make it. That most likely will be the end...How do you reinvent yourself when your whole life involves activity? Today was a really awful morning, and I thought to myself, if I feel like this all the time..forget it...How do you deal? Sorry for the vent.
Hi @oopsie, I'm undiagnosed and very new to here but wanted to say hi and that I'm so sorry to hear you are feeling this way especially as it sounds like you have an amazing hubby and share a great life together. I'm sorry I can't offer any advice on on your MS but I can on feeling lost for whatever reason and that is reaching out to people for support (family and friends but especially here) I've only been here a short while and it took me while to pluck up the courage and I'm so glad I did as I feel so much better being supported by others who know where I'm coming from. Sorry if I couldn't have been more help but I know there will be plenty of people here who can help. Good luck and take care.
"How do you reinvent yourself when your whole life involves activity?" It is difficult; seriously... My life revolved around sports - the good news is that I am in my 60's. I played baseball & wallyball my whole life; climbed volcano's & been in a few jungles. That part of my life is over; non-negotiable. So Plan B it is... Combing through my past, I realize there are sedentary things I enjoy. Card games, fishing from shore, coaching teams, helping children. This will be my new life since I have no choice. You just need to figure your "Plan B". And ensure you treat your partner well; so they stick with you on your journey through life...