Last reply 3 weeks ago
Loneliness

Hi – does anyone else wish MS live alone with a small social network around them? If so how do you cope, especially of you have physical difficulties? I just find lonely – I now there are MS groups but that feels almost like it’s ‘rubbing it in’ I don’t know any tips welcome- thanks

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finn15
4 weeks ago

Where about sin the country do you live? I say that because it’s just a case of finding the right group and this might be one of the groups linked with shift.
I have taken up New interests to distract from the MS and have found this helpful.
Find what you can do within your limitations? I throw things in pots for example


sophieshift
3 weeks ago

Hi @craigsreddie, if you could do with some company, you can chat to another MSer 1-2-1 over video call. You can sign up here: https://shift.ms/co-vid-companion


amy_feltham
3 weeks ago

@craigsreddie I have struggled on/off with this over the years of diagnosis. I’ve found a few things helpful. Locally, Mind (the mental health charity) run some groups to support good mental health like cooking, craft and yoga. You don’t have to have mental health issues, they are to support good mental health which it sounds like you need. Also finding doable exercise (I’m all about yoga and play wheelchair rugby) – you can find out what accessible sports are available near you here https://www.scope.org.uk/advice-and-support/disability-sport/ – see if there’s anything you fancy. I go to ‘standard’ yoga and aqua aerobics and just let the instructor know. All these are really just ways to be around people and you might find that you make some friends. Good luck ❤️


highlander
3 weeks ago

@Redd
Does this ring any bells?


will_berard
3 weeks ago

@craigsreddie Remember that loneliness is subjective (as opposed to social isolation, which is objectively quantifiable) – the way you relate to the situation is as important as the situation itself.
That’s the core idea behind CBT (as well as Stoicism and Buddhism, just to name a few).

There’s a free and very fun CBT Chatbot, woebot: https://woebot.io/ – I absolutely love it. It’s been updated with content specific to the COVID pandemic (or indeed its effects on mental health)

I can vouch for the covid companion. You will be paired one-on-one, but if people fancy joining a group chat, we’ve got one here: https://join.skype.com/mMYxDNaWiDYX

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