Last reply 10 months ago
Live-in care for younger people


If there’s anyone out there with PPMS, who is under 100 (really) and has live-in care, please could you get in touch?

I’m struggling to find an agency which doesn’t say “We’ve never cared for a younger person before” and it’s starting to grate… It’s as if someone who requires live-in care can’t / shouldn’t have a social life and MUST be in bed by 10pm every night.

Anyway, I’d love to hear from anyone who has a positive experience of NOT using personal payments to find decent live-in care.

BigSis x

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10 months ago

Hi @bigsis and welcome.

I can’t say that we have that many members over the age of 100!

But, your request is fairly niche, so I’m not sure how many responses you might get.

My only thought is to call up the MS Society Helpline on 0808 800 8000 and see if they have any advice. Or even call up SCOPE on 0808 800 3333………..

10 months ago

Thanks @stumbler – I really appreciate the response.

It seems that live-in care is incredibly niche for anyone under 90, as even the care agencies can’t help!

SCOPE is definitely an avenue I’ve not explored – great suggestion. Thank you!

10 months ago

@bigsis , I wish you luck. It’s good of you to support a family member. Your sister?

10 months ago

Sure is my sister, yes. Trying my best for her! Thanks for your suggestions. Still no joy. Sigh.

10 months ago

@bigsis, it must be a bit of comfort to have you as a sister.

@reddivine , have you any thoughts? Thanks

10 months ago

You’d have to ask LittleSis about that…!


10 months ago

Sorry only just come upon this. Stumbler’s remark went into spam folder somehow.
I don’t have a live in carer but I do know people, young people whose care needs require a personal assistant.

Could I ask does your sister live alone? What are her care needs? Does she use wheelchair for instance – does she need hoisting in/out bed etc.

Are you/is she getting direct payments? Have you considered hiring a personal assistant instead of hiring carers?

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