Liasons
Hi I'm new too the group ..I was diagnosed with fibromyalgia 3 years ago knew something was more wrong so asked to see neurologist which he said to have MRI as I was worried because my aunt has Ms.
So MRI should up something which lead to lumbar puncture . That's when in June 2018 a week before I was going to see Michael buble in concert I was told I have Ms.. rrms
Truth be told it was like a weight of my shoulders finally i had a diagnosis that could be helped.so Sept 2018 I started copaxone injections which I'm finding ok but my last MRI in Feb showed another laison on Brain .I've another MRI in 2 weeks if another laison pops up there taking me off injections and onto something stronger ..
I'm just wondering if this had happened to anyone and what meds are they on
I was Copaxone for 11 years when I was first diagnosed. I would have occasional relapses...like 4 in that time...that were quickly shut down with IV predisone I could administer myself once a day. Over time my Dr thought I wasn't reacting as well to Copaxone and was gaining lesions without any physical symptoms. Still walking, talking and working, etc. He moved me over to Rebif for the last 3 years. His concept is that in time they are less effective for someone so you need to keep an eye on them and consider switching if you are no longer responding to it. I was taking the higher dose of that and got flulike symptoms and in general didn't feel well. My liver panels also were impacted. I switched over to the lower dose and haven't had any new lesions but have declining mobility...not sure if it is related to MS or a nerve impingement from my hip replacement 2 years ago. I will be visiting Mayo in another week for a whole work-up.
Thanks for reply @itsmewithms I'm on 40ml off copaxone think that's stronger dose .my Ms effects my arms slightly.. Hope your appointment in mayo goes well