@milliepipkins 

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milliepipkins

Lemtrada white blood cells

Hi everyone, I'm new here. I was diagnosed in March 2018 and underwent lemtrada in April 2018 after 3 relapses since January 2018. I was actively relapsing when I underwent the treatment, apparently this was better as it attacked me at my worst. Anywho, my most recent blood test showed that my white blood count is now 0.5. As I understand, your WBC should be between 3,500-10,000. I was just wondering whether anyone knows how long it takes for them to get to a suitable level? Do they carry on going up 0.1 per month or is there a surge at some point? I have my second round of Lemtrada in April 2019 and am very scared of them depleting what little wbc I have already. Hope everyone is well. X
@Stumbler

Hi @milliepipkins and welcome. @tracyd , do you have any words of wisdom on this subject? Thanks

@TracyD

@milliepipkins White blood cells range is (according to the tolerances on mine) between 4.0 and 11.0 Now that’s based on whatever many parts per parsec or whatever they’re measuring them in. Your WBC count can go up as well as down at many points in the year, if your body has been fighting an infection they can become very depleted. If they’ve been low for a significant time, it’s worth asking your doctor to do investigations into a potential cause for this - don’t push your doctor down a Lemtrada rabbit hole so that they don’t ignore potential other causes for it. At this stage post treatment though 0.5 is actually a pretty normal reading for a lymphocyte count - is it possible that you are confusing the different readings? If it’s your lymphocytes then that’s a great reading - the longer they take to recover, the longer they’re potentially not damaging you in an MS way - they’re unlikely to even make it back to the low end of normal before round 2 when they’ll get killed off again. If you need to see my results for the last 3+ years as a comparison please drop me a PM with an email address and I will send you the spreadsheet I use to track all my results - I have no problem sharing them, they’re published online for the world to see in my blog and on the Facebook groups. You have a friend request, happy to share contact details if you need to talk. xx