Lemtrada recovery
Hi everyone
I have recently had my second Lemtrada treatment, about 5 weeks ago now.
I felt that the treatment itself went better this time (no rashes this time thank god) but did have sever headaches.
I am finding that this time however my recovery time and especially my energy levels are taking much much longer to build back up.
I feel like my brain is in a continuous fog. physically and mentally I just feel tired all of the time.
Physically I have definitely slowed down and my balance and coordination have got worse since the treatment.
I was wondering what experiences everyone else has had and whether this is a common trait following the second course of treatment.
@tracyd, do you have any words of wisdom? Thanks
Hey Adam, I am due to start my first Lemtrada treatment next week so keen to hear your experiences. I could of gone with Tysabri but my feeling is get it over & done with in 5 days rather than every month. Im nervous but hopeful that it will stem the beast 🤞 Good luck with your own journey & keep us posted 👍