Last reply 1 month ago
Lemtrada

Hi all just joined this forum hopeing for advice basically I received my first round of lemtrada in March 19 what I would like to know is if the pre-existing symthtoms get better mine are left leg weakness and balance problems. Thanks for reading 😀

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highlander
2 months ago

@enzo
Hi and welcome to the club.
Under your post you’ll see a box marked lemtrada if you click on that it’ll take you to previous posts about it.
Any thing else you’d like to know feel free to ask.
We’ll find an answer some how or another.
I don’t take that med but I’m sure others will chip in in a while.


stumbler
1 month ago

@enzo , the answer to your question is, unfortunately, possibly.

A lot depends on how well the Lemtrada works for you, your agr and your available neuronal reserve (spare brain capacity).

Once your body stops attacking yourself, then it does get a chance to repair existing damage. But, we are all so different……….


joanne46
1 month ago

Hi there
My symptoms were exactly the same as yours, balance problems and left leg weakness, I finished round 2 at the end of November 2018. My journey has been tough, I sat back and waited for things to Improve which on hindsight made my left leg weaker and my balance worse. You need to keep moving and keep exercising to build strength and stability. I have found a fantastic neuro physiotherapist and I work with her twice a week as well as gym work twice a week. I am gradually getting stronger and my balance is improving but I’m still not back to my pre treatment days yet. Lemtrada drains your body (well it did mine) but I have had no relapses since round 2 and my MRIs are stable. Maybe you will see some improvement naturally but I wouldn’t bet on it..,,this treatment is meant to stop the relapses which for me it has… but you also need to work at it too, good luck 😉 I’m confident I will get to where I want to be, I just which I had worked at it sooner.


Anonymous
1 month ago

Hello to everyone and thanks for replying. Quick update I’ve just had the Ms nurse come round to see how I’m getting on and she said I have weakness in my left hip which may be slowing down my improvement with the walking.has anyone had anything similar.😎


joanne46
1 month ago

Hi
Yes my left hip is the problem which affects the leg, you need to do lots of utes, hip work to build the strength back…it can be done, you just have to work at it I’m afraid


joanne46
1 month ago

Glutes not utes 😂


stumbler
1 month ago

@enzo , I would hope that your MS Nurse is referring you onto a Neuro-physio to address this weakness…………


Anonymous
1 month ago

Yep I have a neuro physio nurse starting my physio in just over 2eeeks and hopefully start seeing some improvement in my left leg also Ms nurse noticed my left side hip is weak so I just got to have bit more patience.👍

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