@Lushy 

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Lushy

Lemtrada

Hello all. This is my first post. I look on here all the time though,it's really helped me. I don't feel like I'm on my own and alone. It's been a scary 2 years. I got diagnosed in 2017. Prior to that I suffered loss of vision in my one eye 4 years ago and nothing was done. 2 years ago i suffered pins and needles in my legs really bad so the doctor referred me for a MRI scan. Results came back and it said finding likely consistent with ms. Went on to have lumbar puncture & the eye test. When saw the neurologist he said you have MS. At the time he said I didn't need medication,I have suffered for the last 2 years with on going symptoms. I then went for another MRI scan in November,got results back a week ago and now I need an infusion. My MS is highly active. So I'm considering lemtrada. I'm really nervous . I'm 33 and think has anyone else got highly active MS and went on to have lemtrada? Did it help? It feels like every day is a bad day my symptoms are consistent. I'm a mother of two beautiful boys but I feel it's not fair on them as I have no energy. I'm just hoping lemtrada will really help me. Thankyou for reading XX
@Stumbler

Hi @lushy . You have to question a Neuro, who tells you that you have MS and don't need treatment and then two years later tells you that it's highly active! But, that's all history now and he's taking it seriously now. Lemtrada, like all of the MS medications, is a powerful drug. But MS can be a debilitating condition, so it needs to be hit hard with the best weapons at our disposal. Lemtrada is an Immune Reconstitution Therapy, meaning it allows your immune system to be rebuilt, without the MS. And, without the MS attacking you, your body has a chance to effect repairs to the damage already done. And you have age on your side in this respect. Check out the previous discussions on Lemtrada. They can be easily accessed by selecting the "Lemtrada" tag that has been automatically added to the foot of your post above.

@Lushy

Hi stumble, thankyou for messaging me. Fingers crossed when I do have it, it slows everything down and my MS becomes less active. The last few days have been alwful with tingling, numbness & weakness in my arms and stiffness is my legs. I saw the MS nurse last Thursday, who was going to give me steroids but changed her mind and told me to take Amitriptyline. I am still suffering from my symptoms very bad and feel let down. I'm not getting listened to by professionals like MS nurse. I feel like they are not interested in what I have to say and has been an on going battle for over two years. I also feel neglected by the neurologist I first saw, three times and he was adamant I have no trace of MS. I'm sick of moaning but I feel let down.