Last reply 2 months ago

Hi all,
This is my first post. I’m 5 months into the second round of treatment . I’m feeling good generally but I’m experiencing more frequent bad days lately and walking is a struggle. I’ve been lucky really and have only experienced a minor rash, minor shingles and a couple of colds since treatment started but things are definitely not improving . Latest mri showed no progression so it seems to be doing its job and my consultant only contacts me if there are issues with bloods and urine and he hasn’t. Anyone else had feeling of worsening and did things improve?

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2 months ago


Can totally relate to this. Last summer was my first one after my 2nd dose and I really struggled. I can’t walk as far as I could before and last year really struggled with tiredness. Good news is, this year is much better. I seriously don’t stop (toddler, busy job, busy life). Also exercising has been a big help. I have developed am over active thyroid but overall glad I did it. It will improve xx

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