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@Randilla 

Last reply

Randilla

Leaning towards Tecfidera

I was diagnosed with RRMS last week. The neuro gave me some options in regards to treatment; I'm to take a week to educate myself and hopefully come to a decision. Tomorrow will be one week. I'm leaning towards Tecfidera, but I'm absolutely terrified. I'm terrified about all of this, but in regards to the treatments, there seems to be so many horrifying potential side effects. I know they're just that, potential. Kind of like, what are the chances? But I also never thought I would be diagnosed with MS... Can anybody tell me more about PML? I've read up on it, but I'm wondering how it can be prevented? Or how my neuro would know if it's time to stop Tec and try something else? I've read so many posts on here and they have helped; I just feel scared and alone.
9
@Highlander
@Highlander
 

@randilla Hi welcome to the club. I've been using tecfidera for 2 years now and after about a month most of the side effects don't happen anymore. I have occasional flushing but that's probably caused by me not eating before I take it. With regards to PML. You'll have your bloods checked every 3 months. Your MS team will advise you what to do. It's not been an issue for me. I've just had my bloods checked today. The first few weeks from memory take a little getting used to but after that it's just part of your daily routine. I've been classed as NEDA since I started which means no evidence of disease activity. Only having your yearly MRI can they tell if it's actually doing anything. But so far so good. Under your post above you'll see some boxes relating to some of the things you mentioned click on them and it'll take you to other posts made about it. Welcome again 😊

@Randilla
@Randilla
 

Thank you for the reply, @highlander It's just been a lot to process. And then I learned about PML and the mortality rate; things just kind of spiraled into negativity from there. And when I talk to anyone in my life about treatment, they all recommend foregoing treatment and instead finding natural remedies. I'm scared of MS treatment and I'm scared of not starting treatment :/