I’m on my day 4 on it after being diagnosed with ME 3 months ago.
Initial dose is 120 at nights, and for the next 4 weeks I’ll follow this pattern to reach the final dose.
First two days I didn’t feel anything, maybe some heating feeling in my shoulders and back A few random times during a the day for a few minutes, but looked at the mirror and I had no flushing nor was even sure if I was feeling it or not, as we are at 38ºC here in Spain so it’s normal to feel hot 🙂
Now in the 4th day I woke up a bit dizzy and more tired than usual, and during the day I have been with the same feeling and also some nausea but not to the point of vomiting. I managed to work and do my usual life with kids etc, just with this soft dizziness and nausea feelings.
I have been told by my doctor to use omeprazol if I have stomach pain that I have not and domperidone for the nausea but I haven’t yet as it’s not that bad so far and prefer to use it only if I feel very sick when I take a higher dose.
I’m not even sure if this isn’t related to tecfidera it I guess so. Let’s see the evolution in the next days.
What were your initial experiences?