@Linzie_Emma_Lucy 

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Linzie_Emma_Lucy

Just some advice on stuff :/

My name is Linzie-im the one with dark hair in my profile pic :-) I was diagnosed with RRMS when I was 23 (I'm 33 now) Ive been pretty much the same with relapses here and there throughout. I had 3 relapses in the first 10months of my diagnosis and was offered DMT's but I refused as I wanted to go without for as long as I could with v.few meds.....that was untill now! Ive had spasms, MS hug, vertigo to name a few but I have recently (July 19) had the worst relapse ive ever had and it seems to be never ending! I had to call in sick for work (psychiatric nurse) but ive since been told I can't go back to my job doing the same role as its a high risk ward :( I love my job but I'm just not physically able to do it anymore😢 I went off sick and 3days later I couldnt walk, drive, shower myself, cook my food, carry anything (and I live alone) two weeks later I woke up one morning and couldnt see 😭 It has been horrific! My cognitive function is also shocking to say the least! My sick pay has gone to half pay, I'm claiming pip and I went to universal credit last week so I'll be receiving a bit off them at the end of the month but they make me feel so guilty about not working etc (even though I'm still employed) Im off work sick as I'm not fit enough 2go back to work at the moment.eugh its just so frustrating. Anyway I'm currently taking plegridy ive had 2injections but I'm currently v.bruised from the latest one. Anyone any advice on this peginterferon injection or beta interferon it might be called🤣 Apologies for this essay just helps to get it all out sometimes! Much love Linzie xxx
@beckybarnes

Hi Linzie. I was diagnosed with MS last year after a severe optic neuritis attack which has left me permanently blind in one eye. I also have damage to the communication path between my brain and my right leg and its becoming increasingly difficult to walk even with aids. The severity of my optic neuritis attack has led my ms team to suggest I've had MS for a considerable time and because it was undiagnosed it was also untreated. I'm 47 and quite disabled. The foundation of ms dmt's from what I understand it is to protect you from a future disability that you would have accrued if you had not begun treatment early on....such as myself. I can understand you wanting to put off treatment and possible side effects until later on but just consider that waiting may reduce a lot of your options. I started Lemtrada this year and I'm due my second treatment in Feb 2020 . I've never been much of an advocate of medical drugs but when your consultant explains your remaining sight may depend on it it alters your previous opinions somewhat.

@Linzie_Emma_Lucy

Hiya @Beckybarnes I really wish they had explained the medication side of things alot more clearly (like they did in July) as I may have been more likely to start treatment early.