Last reply 4 days ago
Just diagnosed 9/4/20

I am the husband of the person who was diagnosed with multiple scerolsis. My butiful wife is Sarah and she is only 41 we recently moved across the country and shortly after that I started noticing that her hair and balance were giving her trouble. It was so bad that police officers have stopped her to see if she was intoxicated or on drugs. FINALLY after 6 months of Dr appointments we got the news that they are looking at giving her a shot of something new please anyone who knows of this procedure any information about it would be appreciated thank you.

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watsoncraig
2 weeks ago

Hi 👋 @ronsarah welcome to the forum. Been there with the police after a member of the public reported me after seeing me at an ATM without a crutch.


vixen
2 weeks ago

Hello @ronsarah, great that you’ve joined on behalf of your wife. As your wife has Secondary Progressive it might mean the doctors are talking about Siponimod, which is fairly new for folks with SPMS. In fact, it hasn’t yet been approved in the UK. Here is a link to the MS Society and some articles on it. (Not sure if it’s branded the same name in other countries)

https://www.mssociety.org.uk/search#resultType=list&q=siponimod&sort=relevance&page=1&results=20


itsmewithms
2 weeks ago

Welcome and thank you for being supportive of your wife in this time of great change and stress. This site will offer you good support and advice as will the MS Societies. I have also learned a lot from Dr Boster’s site so will include a link to his “message to the newly diagnosed” but he has hundreds of You Tube videos that are very digestible. He goes over many of the DMTs (treatments) available. It may be a bit US based and all treatments are not available in all countries so beware and the health care structures are radically different. Our issues are often the same 😉

Most of the more effective treatments now are “infusions” so given a couple of times over a matter of hours. Some people still take shots given through the week at home and there are some oral options as well. Be aware they function differently, have different side effects and seem to work differently for different people. Some people also seem to benefit more from different supplements, diets, exercises, etc. We all benefit from some of the basics, reducing stress, stretching, Vitamin D3 and not smoking.

This is the starter from Dr Boster but check out his channel for information on all things MS https://www.youtube.com/watch?v=wvQXygHtYzc&t=127s


golgotha
4 days ago

You don’t say what symptoms she has besides walking issues. (I walk like a drunk too! 🙂 For many issues there are some medicines that can address the particular issue.

And you don’t say what DMT drug your wife is taking (or if she’s taking one).

But I *strongly* recommend itsmewithms’ recommendation of Dr. Foster. He’s a mainstream neurologist that has a *lot* of experience with MS. (He was spurred to become a neurologist because as a kid he saw his favorite uncle have MS.)

Dr. Boster *loves* making YouTube videos and he has made dozens of them (literally!) on lots and lots of different MS topics. You and your wife will likely find them both reassuring and informative.

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