Just checking in
Hi my name is Kari, I don't have MS but my husband does. In fact as I'm typing this he is getting his first drip of Orcuves (sp), he was on Avonex the last 13 years. I basically joined to see how you deal with the effects of MS. Almost 14 years ago when my husband was diagnosed with it, I was at a complete loss. We had only been in our new home a year, our son just started Kindergarten, I had just started a new job. Needless to say I was a hot mess there for a few months trying to juggle everything. They first told us it was GB, yup, went home and looked it up I cried for hours. When I went the next day to see him after work, picking up kids from daycare, running them to my parents. They told us it wasn't GB it was MS. During all this process my kids were blaming themselves, because "a fly got into daddy's pop and he drank it, and we didn't tell him" yup more crying by me, I tried like crazy to find a support group. Applied and sent info to others and nobody ever got back to me. Again I don't suffer from MS, I'm just the bystander trying to make my husband's day to day better. I'm hoping reading some of your posts can help me, help him. Thank you for letting me join.
Hi, My wife has MS, its all new for us, and I find it very, very difficult to beat the mental demons. I find myself thinking about it a lot of the time and catastrophizing about the future. So far at least is does not affect her much, but we are used to illness as she has another serious chronic condition. This forum has lots of information that partners like us can feast on and which we can use to the good.
First, you are not a bystander. When one person has MS, it effects the entire family. I have PPMS. I’m on Ocrevus and following The Coimbra Protocol. So far I’m slowly progressing but I keep researching and have much hope. Sounds like you have many blessings in your life. Be grateful for those daily and keep hope alive. It really helps!