Last reply 1 month ago
just bonnie

Have not met many people with M S , went to a meeting once in barrie couldn,t believe from the time i got there it was only about how much money can we raise for ms society, didnt meet any one on a person to person level, didnt learn anything at all, was so disapointed I never went back this was 30 yrs ago. Went to the government to get help with a scooter over a year ago to date they sent 3 workers to my home and nothing done no help no contact for some time now and one worker even asked if I can prove i have ms,awww yes cant walk very well at all wa diagnosed 30 yrs ago , no doubt here at all m I have got optic nuritis with this i was hos[italized for a month 10 yrs ago with parilization from beck down had to learn to walk again have severe numbness on left side

well here we go I was diagnosed 30 yrs ago,with this terrible disease, with it I have optic nuritis lost my sight in left eye 30 yrs ago for 9 months, lost color as well’ but happy to say that is all back,yaaa me. Have gone to the government for some assistance in a scooter over a year ago to date no assistance, although they have sent 3 workers to my home, one of them even questioned me If I had this disease,feel like saying no I walk like a duck couse its fun. Its a terible feeling to think the government workers question weather I have this or not , Believe me if I had a chance to not have this I would gladly take it , I sighned up with the MS society 30 yrs ago but have moved around since my husband died in 2012. since then with out family I have no help. I guess what Im trying to say is im tired of trying, would love to meet some msers who live the same life but may know how to get help,

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1 month ago

@bonnie_fraser , we all have tales to tell. and we all have learnt that if we want things to happen, we have to make it happen ourselves.

Can I assume that you’re Scottish, from your choice of username? If so, I’d contact your local MP regarding your attempts to obtain a scooter.

I also acknowledge your comments about meetings. They can be rather formal. Hence the reason why groups of Forum members arrange their own get togethers. Lookout for these meet-ups being advertised on this Forum.

There’s also the map of Member’s locations, which might display some members local to you :-

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