JC, PML, MS........ BFN
BFN (Bloody F*king Norah)
Hello all
Just got back from my 3 monthly neurology appointment, and it wasn't great. (woop-de-shit Marjolie! now there's a surprise)
*note for readers: words in brackets (like these) is what I'm really thinking at any given time. (hm, perhaps I should come with subtitles....rude subtitles, with big sweary balls attached.)
Anyway,
I've been tested today at the hospital for something called the JC Virus, has anyone heard of this? (Jesus Christ! (on a bike)) apparently JC can lead to PML (Piss Myself Laughing?) or progressive multifocal leukoencephalopathy to those in the know (however, I do not care for Pregnant Marmot Linguistics, nor any other variations there of.)
So, I've got to go and have another dye-job MRI scan (yay to number 4 and fingers crossed maybe i'll finally be beamed aboard the starship enterprise with Jean Luc Picard, waiting for me naked holding a cup of tea. Damn, said too much.) anyway- to summarise, hopefully if I'm just having relapse number 3 (shitting shit it) rather than Progressing onto stage 2 of the world-MS-fuck-stick-championships.(poxy pox it) then there is no cause for alarm.
(be cool bird) However, I am feeling that terrible black hole trying to suck me back in.
(Danger Will Robinson Danger)
Cheesy Peas I would swear right now if I could think of some appropriate words.
Any words of wisdom dear folks, or will you, like me, PML? (this is pure comedy genius thank you MS for giving me lots to swear about)
Marjolie x
Black 'Ole Location Lead Occupational Ceaseless Kitten Soloist
(Do I really need to spell it out?)
<a href='https://shift.ms/community/people/marjolie/' rel='nofollow'>@Marjolie</a>, you must have watched the same TV programmes as me in your formative years! Anyway, being positive for the JC virus on it's own isn't unusual. The risk of developing PML can occur as a side-effect of undertaking Tysabri as your DMD. Having said that, there are JC+ folks out there that are on Tysabri. Yes, it is a risk with Tysabri, but it is a known risk and you are monitored for PML. Hope this clarifies. I've avoided the need for brackets as I'd worry what I might enclose! :)
I was tested for JC before I started Tysabri, told it's a precaution. Everyone carries the trigger, not all of us actually trigger the virus though. Aparently and this is from my Neurosurgeon, Tysabri's safe or as safe as it can be for up to 1 year. If you're showing any indications that JC's in your life they'll stop the infusions. Safely stayed away from adding any dark humoured comments in here :-) Chin up, try not to stress and you're right, this is all a load of "Black ‘Ole Location Lead Occupational Ceaseless Kitten Soloist"