Last reply 6 months ago
It’s been awhile.

It’s been awhile since I’ve been on here. I was actually doing really well with my MS. Until Monday night out of nowhere I had a really bad flare up that landed me in the hospital. Lately I’ve been stressing with school and dealing with child support, lawyer fees and court hearing. On Monday night I had a lot of pressure on my head and right eye that caused me to see black spots and blurred vision. Then I was having really bad tremors. I thought it was probably anxiety so I decided to take a shower to see if it will calm me down. While I was taking a shower i don’t remember if I either fainted or had a seizure. But since than I’ve been hospitalized. I have lost mobility to my right leg and will be going to a rehab facility. I have never been so devastated. Not knowing what’s going to happen to me or my baby. It’s been so hard on me. I’m trying not to stress but it’s so hard not to. I feel like my whole world is crashing down on me. I don’t understand why this is happening to me now. When I’m so close to finishing school in a couple of weeks. I’m sorry if I sound like I’m complaining. But I never thought this will happen to me, especially this soon.

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wjgregg
6 months ago

Dear @amber91,

We always hear “stress is bad for MS” but your story has really brought it home. I am so sorry to hear what has happened to you. It seems like a “perfect storm” of events has hit you all at once. I hope that your stay in the rehab facility puts you back on track. I trust that your school will be understanding of your medical conditions, and that you will be able to graduate. Similarly, I hope that the court will take your medical symptoms into account when coming to a decision.

I see from your profile that you are not on a dmt. Have you considered one?

Be strong, and positive, and you will get out on the other side.

Good luck, and all best wishes, to you and your baby.

Jon


vixen
6 months ago

Hello @amber91, so sorry about your experience. Goodness me, if there was any rhyme or reason to the ways things happen at once, I would love to know it. This has been really horrible, but you must trust that it will pass. As all of these horrible blips do. Are you still unsure of which variant of this disease you have yet? Maybe this event will force things through a bit, in terms of medication etc. How old is your child? You are both gorgeous from your picture. Stay strong. Keep dipping in here for friendship. Sending lots of support, you will get through this….x


amber91
6 months ago

I haven’t started any DMTs. The neurologist I’ve been seeing has not been very helpful. I’ve been seeing his nurse practitioners. Which they have been going against his medical advice. So this whole time that I’ve been diagnosed with MS I have not gotten any medical treatment. Until now that I’ve been hospitalized. One nurse practitioner said that it was seizures and that MRIs where unnecessary regardless that the neurologist had standing orders to have it done every 6 months even though I have lesions that were progressively getting worse. Another nurse practitioner kept saying I have Lyme disease even though there is no indication of Lyme disease. Until Monday I finally got to see a neurologist who Specializes in MS in the hospital. It took this to finally get proper treatment. I’m just hoping it’s just a bad flare up. Not a progression. She said that the lumbar puncture pressure was really elevated and the lesions to my brain has gotten worse. I’m trying to stay positive. Especially for my son. He’s only 17 month and he needs me more than anybody right now. Hate is such a strong word to use. And maybe I’m just not in the right state of mind right now. But I “hate” those nurse practitioner for not giving me any treatment for MS and going against the neurologist medical advice when this could have been avoided.


rmdaniels
6 months ago

@amber91
Hiya sweet lady, you’ve had a terrible time! I’m hoping your stay in rehab will be a short one. You have way more stress than most people. I wish you all the best & hope you’ll update us on how you’re doing!!!

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