@dvtrv 

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dvtrv

Is my condition bothering you? So sorry

Good early morning everybody, I’m up as have a cough and bit of a chest going on. I think it might, hope anyway, just be back end of a cold. I’m not used to colds really and find them tricky to recognise until I know for sure, near to when it’s on its way out. Anyway; I’m up as coughing a bit and my mind is doing something I tend not to do and “Think”. Never been one to do that and for that I am grateful of as, in my eyes, that is a recipe for a complete shut down, I’m coping, I think, I’m thinking how maybe I’m upsetting people and causing unsettlement in people then, WOOAH HANG ON!!! My “cold” is most likely because I went 11 weeks off Tysabri after 7 years and 73 infusions and am due to start 2nd week of Mavenclad tablets and I’m told my immune system is going through a complete overhaul. *******************no bold option****** Bit of background there and here is my reason for being on here this morning; *******************no bold option****** Why have I considered to put blame on myself when I’m the one struggling through my, seemingly inconvenient disability, surrounded by people, not their fault mind, who are ignorant to My condition through their lack of understanding as to how it affects me? I’m not claiming to know understand my condition myself and am in now way expecting anyone also to get it either. Only place I can go for a possible, “sensible” answer, but, does any of this make sense or relate to anyone out there is this dark world, dark MS World?
@dvtrv

My mind works better the earlier the time of day, By the time others wake I’ll be knackered and most likely be struggling to string a coherent sentence together. I decided to copy the first part of this thread and show it to someone I know but then stopped as couldn’t think of anyone else other than the only people I can think who’d read this an possibly have a snippet of “understanding”. We’re are all different any, even with the similar diagnosis of MS. Jus sayin

@grandma

@dvtrv know exactly what you mean. Typing this at 7 in the morning. Been up fir an hour, just posted a lament cos I'm losing the dogs. Will be useless by lunchtime, good excuse for lying round all afternoon but explaining to people is still a pain in the but, but knowing I don't have to explain to you peeps means a lot👂😍