@irishangel111 

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irishangel111

Introduction

This is my 1st post. I'm in the UK, my name is Deborah and I was dx with RRMS in Feb 2013 following 6 months of having pain and numbness in the upper left side of my body...an MRI and lumber puncture were used to diagnose me. I worked as a surgical nurse back then, I'm able to still work full time and I'm a cancer nurse specialist today and know I'm extremely fortunate to be as well as I am. I've had one relapse in 2015, which lastsd for about 10 weeks, I had extreme fatigue and global spasms and pain. This year I have developed L'hermittes Sign bilaterally in my legs, very very very annoying when it happens. I have never used any drugs throughout, except paracetamol, we tried a few but the side effects I felt from them where too ghastly, they have offered me steroids for the L'hermittes, but I declined, to me its a nuisance, but I can live with it. They said it would settle in 6 weeks or so, but its been here since December last year...a very long 6 weeks! I do work and I love m job but I sacrifice a lot to be able to do that, I have a routine that keeps fatigue at bay for me - I live alone - I get home from work, have a shower, get in my pjs, have dinner and go to bed, having my legs out in front of me, is more comfortable for me than sitting, in fact I only use my sitting room if I have family or friends visiting! Its a lovely room too!! I have 2 grown children and a baby grandson, who is just gorgeous!! I keep my fatigue and pain to myself and I've learned to push through when needed and I deal with it mostly alone..you know the saying..you dont get MS until you get MS...and its so true, people are kind and have sympathy but essentially they clueless and I dont wanna waste their time and mine trying to get them to understand, I dont mean that so sound mean, its just how I see it. I think of MS as a travelling companion I didnt choose, no matter where I go its there, trying to butt in. Again, I know completely how fortunate I am with my MS, I have nursed people with PPMS and that SOB is nasty, mean, unrelenting and unforgiving... Just here to say hello...trying always to stay positive and move forward, even if its slowly.
@Highlander

@irishangel111 Hi and welcome to the club 😀 Feel free to ask anything you like. Under your post above, there are some boxes relating to some of the things that you mentioned, Click on them and it'll take you to other posts made about it. I'm sure you'll get more messages soon. Welcome again 😀

@Vixen

Hello and welcome @irishangel111, good to meet you. Love your positive attitude. And I love thinking of MS as an unavoidable travelling companion, that’s brilliant! I too have a strict routine which supports working life. However, I’ve now made the decision to cut down my days so that I can hopefully gain a bit more energy for free time. Do your children live quite close by? I hope you enjoy being a part of Shift. Have a great weekend :-)