Last reply 2 months ago
Info needed on 3 DMD's

Okay so we all know were different and that ms varies between us but jus want personal opinions, I have read all info from the mstrust, ms society and even Dr bosters advice.
..
But I’m after personal specific findings for the following dmd’s:
..
Gilenya (Fingolimod)
Ocrevus (Ocrelizumab)
Mavenclad (Cladribine)
..
Okay so what I’m really asking for and want to know is your personal experiences of the above..
..
What are you taking and how long for
..
How do you find taking / having the dmd
..
What side effects you have found
..
Have you experienced a relapse whilst on the above
..
Is there any sever risks / effects that you have found, i.e liver problems etc if so how was this treated
..
I know this is a lot but I’m trying to figure out which route to go if any.
..
Thank you all 🙂

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


itsmewithms
2 months ago

These are some common DMTs and there are a lot of people in this forum. If you use the magnifying glass in the upper left there have been many posts on them if you just enter them in and search.

Copaxone was my initial DMT back in 2005 and I was on it for like 11 years. It was one of only a couple of options at the time. It may have slowed progression but I did have relapses over those years. I was bumped to Rebif for a few years and had no physical relapses but had progression as measured on MRIs and mobility so was moved to Ocrevus last fall and my Neuro finally started the discussions with me regarding SPMS impact.

I don’t know the impact of Ocrevus on my MRIs as I haven’t had my spring ones yet and now with the whole Covid19 mess they haven’t even been discussed. I will bring it up with my neuro as I work through this next treatment but I suspect he will know no better than I at this point of when they will be scheduled.

But physically I feel pretty good and had none of the scary side effects that are listed as possible. I have been doing better with my diet, PT and sleep as well so they all likely contribute to stability. The whole “4 for 4” that Dr Boster encourages and I toss in a couple more for good measure 😉


stumbler
2 months ago

@katfight , rather than use the Search Function, just select the appropriate “tag” that has been added automatically to the foot of your post above. 😉


katfight
2 months ago

@stumbler that’s clever 😂🙈


katfight
2 months ago

@itsmewithms

Thank you for your personal account, this it really helps me to process things more logically. Yup my brain works differently to most, I have read the hard facts as mentioned but knowing personal views really helps me to understand more so thank you.

I could deffo do with some good sleep and a better diet aswell, hit me with your tips haha 🙈

Thank you again itsmewithms

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.