Last reply 2 months ago
I'm a newbie

Hello I’m jacqueline from Preston Lancashire, I was diagnosed in 2004 with lupus but over many years got worse then after being sent to a professor I had months of many tests and scans also lumbar puncture then in november 2019 I got told I’d never had lupus I actually had ms relapsing remitting,so now im waiting to start copaxone which I’m nervous about but know deep down it’ll be ok,Im actually releaved as for a long time I felt lost and confused had no one to speak to I lost so many friends but I’m good well that’s me 😁

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2 months ago

Hi @jacqueline82 and welcome.

Our bodies are complicated pieces of machinery, so we have to accept that we sometimes give of the wrong signals. Our Doctors can only go by what they see, what their tests tell them and what we tell them. And they sometimes take a wrong path.

Copaxone is one of the original first-line Disease Modifying Therapies (DMTs) and is well tolerated. Injection site reactions seem to be the worst issue, which can be mitigated by disciplined site rotation.

A “Copaxone” tag has been added automatically to the foot of your post above. Select this tag to locate previous comments about this treatment.

There are also other DMTs that are more efficient which should be available to you. These can also be injectable, oral or infusion.

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