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natale_j_berube
1 month ago

I’m wanting a pill from of medication for ms


nurse47
1 month ago

I would recommend Gilenya which is a tablet once a day. It was effective for 5 years with no new activity on MRI and I felt great on it.


natale_j_berube
1 month ago

Thank you so much for your help and I will ask my doctor about it because I am having trouble with doing the needle everyday and I did get more lesions with copaxone


strictlysoca
1 month ago

It’s great that you can change from a ineffective medication to something that might help. I have been taking Gilenya for the last 5 years successfully but if I could choose now I would have Mavenclad/cladribine as there are issues with stopping Gilenya and rebound activity. I wanted it at the time of starting Gilenya/fingolimod but it was only available off label and my neuro would not let me have Lemtrada.

Good luck with your choice and try not to worry too much about it whatever you choose will be the right decision for you at the time.


vixen
1 month ago

Hi @natale_j_berube, I have been on Tecfidera for three years and it suits lifestyle perfectly. There are lots of folk on here on it too. It’s 2 tablets a day, taken with a mixture of something with fat and protein. So it’s not too invasive, and the upside was that it may be focus on a sustainable healthy diet. Good luck! πŸ™‚


itsmewithms
1 month ago

I went from Copaxone to Rebif and have now moved to Ocrevus (twice a year infusion). I am waiting for my first MRI since switching to it so am uncertain if there are new lesions but I don’t think so.

My neuro usually gives me a short list of options and I research them and come up with a preference. This group always has great suggestions and I check through the playlist on Dr Boster’s You Tube channel- https://www.youtube.com/playlist?list=PL3a4GpjWLtCjzcJzGEcQC0Z3S4xGA-vaM

You can also put any of the DMTs you are considering into the little magnifying glass in the upper left to find discussions on it-

Good luck-


natale_j_berube
1 month ago

Thank you all for your help i am feeling really nervous about changing my meds but I don’t want to suffer from the copaxone anymore since I started it! I didn’t know that it was the copaxone until I looked up the side-effects and it was really horrible to find out that it’s not the ms it’s the copaxone treatment πŸ˜”! I will keep you posted on what happens next 😬! Have a great day everyone πŸ˜€

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