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vixen
1 month ago

Hi @jo_perpetual,, welcome to Shift. I takes most people up to a year to fully get used to the idea. How are you doing with your symptoms, and are you on medication? Ignoring it is useful, as you don’t want to it start taking over your thoughts. So long as you don’t push yourself too hard and know your limits….


stumbler
1 month ago

@jo_perpetual , I think we all know that feeling. 😉


jo_perpetual
1 month ago

@vixen, i think i have it easy, my worst symptoms are fatigue and pain on some good days. Recently i have problems with tremors and balance, i am regular with my drugs.
Your reply made me cry, btw


geee_h
1 month ago

@jo_perpetual
You’ve checked out the interweb….you’ve found individuals who still ride bikes n go hiking or jogging, n then individuals who can’t walk without falling over or hold a pen and write their own signature. (That’s me)…
That’s MS….it’s a lucky dip (but the luck is entirely relative🙄).
If you’re diagnosed but still able, then keep on top of your treatment plan n carry on as best as you can.
It’s hard to explain, but in simplistic terms, try to recover what you feel it’s taken from you, sometimes you’re head noodle will join in and surprise you by re learning…..the down side is, sometimes it’s a “done deal” n the noodles given up on being a trapeze artist🙂… in which case, it’s time to re assess n make the best of what’s available….n sometimes with small allowances (and a few weeks/months adjustment, if you’re lucky,) you kick it’s ass and you’re on top again.
If there’s one thing I’ve learned since I joined this forum, it’s that no matter how severe or unexpected ms symptoms present themselves….test it, every step of the way….n if it don’t achieve much then hey…..it’s not for the want of trying.🙂👍 shift you’re MS👍


jo_perpetual
1 month ago

@geee_h thank you so much!


vixen
1 month ago

Hello again @jo_perpetual, has treatment been discussed with you? I can see you are in Nigeria, and I would think that MS isn’t quite as common there as in the UK and US. Hopefully you will find Shift a useful resource. It’s really handy to use the search box above to look for posts on particular topics. I can tell you are a strong and positive person, and that is the greatest gift to deal with this annoying condition we have!


jo_perpetual
1 month ago

@vixen 😁😁😁
I’m currently on an off label medication for MS.
It isn’t common at all, I’m yet to find another person like me in Nigeria. I’m hopeful, though in glad i stumbled on this website.

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