HSCT or DMT
Hi everyone
My head is spinning so need help.
I was dx Nov 18 and am still waiting for a dmt on the NHS. I have been offered any drug I want but been told to basically decide for myself! I am going for a Ocrevus talk I a couple of weeks but also interested in Clad.
I have booked to go for HSCT in Russia in July as I decided to hit it hard very quickly but now I'm starting to doubt my decision.
Not really sure what I want from this post as I know everyone's experience is different but I really am terrified of all of the options and have little faith in my ms team 😥
@debz , I'm not surprised that your head is spinning. It's now getting on for 6 months following your diagnosis and you're no further forward than you were then. Have you had an introductory chat with your MS Nurse? They should be driving your DMT choice. All MS treatments are serious medicines, which befits the serious possibilities of MS. But, the risks associated with DMTs are known risks and can be managed accordingly. However, Stem Cell Therapy is still in its infancy. It's a very costly procedure, highly aggressive and can have serious repercussions. You must be aware of the BBC journalist, who went for HSCT in Mexico :- https://www.bbc.co.uk/news/resources/idt-sh/caroline_wyatt_multiple_sclerosis
Thanks stumbler I feel totally on my own to work my way through the risk/benefits of each option. My ms team support me going for HSCT and are all geared up to look after me when I return but it's a big decision! I want to get ms kicked into the grass so only 3 choice - lem, clad or hsct. Lem in now unavailable 1st line, clad is not high efficacy so I don't see any other choice but hsct. I need someone to make some decisions with/for me! I have my 3rd head and full spine MRI tomorrow so will know how things are progressing by the end of the week and maybe that will help me choose x