@GosportNancy 

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GosportNancy

How To Get Update For Diagnosis

My GP suspected I had M.S. back in 1990 and sent me to a neurologist who decided not to refer me for confirmation as he decided, without asking me anything about my background, that all of my symptoms were down to anxiety. I was living in Hampshire UK at the time and he was the only neurologist in my area at the time so I just ignored his opinion and tried to move on. I moved to East Sussex in 2013 and my symptoms have continued to get worse. I doubt very much that anyone on the NHS will help as my medical notes seem to influence NHS staff too much. I was hospitalised during an MS flare up in 2016. I had multiple organ failure then went into cardiac arrest and spent several days in a coma. Hospital staff told my husband and my son, separately, that they felt that my symptoms were down to hypochondria. I need something to put on a P.I.P. claim as I have been turned down twice with zero points after decades on the higher rate of DLA. Is the only way for me to get help to go private, as that's not an option for me.
@Denisejulie

Hi , can not the MS nurse help with the PIP ,

@GosportNancy

@denisejulie I don't have an MS nurse as I can't get the diagnosis confirmed. When I applied for DLA. a GP came to my home for the assessment and confirmed I had muscle weakness in my right arm and leg. My opthamologist I saw back in 2013, confirmed the eye problem (visual disturbances and blindness), but said this was ocular migraine. When I was assessed for P.I.P., a health care worker saw me both times but neither of them checked me properly so missed my symptoms.