Last reply 1 month ago
How To Get Update For Diagnosis

My GP suspected I had M.S. back in 1990 and sent me to a neurologist who decided not to refer me for confirmation as he decided, without asking me anything about my background, that all of my symptoms were down to anxiety. I was living in Hampshire UK at the time and he was the only neurologist in my area at the time so I just ignored his opinion and tried to move on.

I moved to East Sussex in 2013 and my symptoms have continued to get worse. I doubt very much that anyone on the NHS will help as my medical notes seem to influence NHS staff too much.

I was hospitalised during an MS flare up in 2016. I had multiple organ failure then went into cardiac arrest and spent several days in a coma. Hospital staff told my husband and my son, separately, that they felt that my symptoms were down to hypochondria.

I need something to put on a P.I.P. claim as I have been turned down twice with zero points after decades on the higher rate of DLA.

Is the only way for me to get help to go private, as that’s not an option for me.

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denisejulie
1 month ago

Hi , can not the MS nurse help with the PIP ,


gosportnancy
1 month ago

@denisejulie I don’t have an MS nurse as I can’t get the diagnosis confirmed. When I applied for DLA. a GP came to my home for the assessment and confirmed I had muscle weakness in my right arm and leg. My opthamologist I saw back in 2013, confirmed the eye problem (visual disturbances and blindness), but said this was ocular migraine.

When I was assessed for P.I.P., a health care worker saw me both times but neither of them checked me properly so missed my symptoms.


denisejulie
1 month ago

I’m sorry, it took a long time for myself to be diagnosed, they put mine down to anxiety, I was diagnosed nearly 2 yrs ago , I have drop foot and weakness on the left side , had many falls at work , can you not go back to your GP and asked to be referred . Im


gosportnancy
1 month ago

@denisejulie I haven’t seen my GP for years and when I have spoken to him on the phone he says he will do this or that and then doesn’t.

I already told him that I wanted a referral but he refused saying times has gone on and other health issues are more important.


denisejulie
1 month ago

How badly are you affected, your GP has a duty of care to you , i would tell him how it’s affecting you , I hope you get some help ,


vixen
1 month ago

Hello @gosportnancy, lots of routine appointments and monitoring have been cancelled at the moment due to Covid. So is that correct that you don’t yet have a diagnosis? The best thing, and something beyond dispute, would be to have an MRI. That’s usually a strong indicator.


gosportnancy
1 month ago

@vixen My GP referred me to a neurologist back in the early 90’s but he said all my symptoms are down to anxiety. The only anxiety I had at that time was what my symptoms might be. The neurologist refused to send me for any tests so I moved on since I wasn’t getting any help from them

My current GP refused to refer me as he says my other health issues are more urgent, only I have to pester him about them too. I have heart failure due to wrong treatment for a thyroid disorder, and a brain injury sustained from a cardiac arrest and coma in 2016,

The hospital staff were busy trying to treat the cardiac issues and didn’t have time to discuss other things with me. Since I don’t have a neurologist, I can’t have an MRI done.

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